Real Time Reflections from Five Years Ago #13

Happy Guys
Happy Guys

This is the 13th in a series of blog postings Karla and I are doing as we vividly recall the events surrounding my brain surgery and massive complications from five years ago in real time. Karla lets us in on her thoughts and I let you in on mine from March 6-7th 2009 at the end of this post. Some of this will be included in the book I am currently writing.

(Karla writing) As I look at March 6 and 7 five years ago, I find it interesting that everything remains very vivid, and feelings that I did not express in the blog at the time are still very real.  So today I have added commentary to pieces of those posts.

From March 6, 2009:

“I’m about to head out for lunch with a friend.  I’m trying to be gone more during the day to see how it goes before I head home.  He is managing just fine!”

I think it is very difficult for people to understand how hard it was to be out of the hospital after all that we had been through up to this point.  Whenever I left the hospital and went somewhere in Rochester, other than just a restaurant, I felt lost.  When walking around at the mall or Target, I always felt like everyone was else was there without a care in the world, and my world was falling apart.

I know that other people had problems as well, but they never looked like it.  Laughing, carefree people made me very sad.  I was wondering if I would ever feel carefree again.  I was wondering if my husband would ever walk and talk normally again.  I was wondering how I was going to get adaptations done to the house that would be up to his standard, and done quickly.

I was wondering if Mike would ever be able to drive again…  It was always better to get back to the hospital, where everyone had health issues and I could focus on the immediate issue at hand.  It was easier to just stay in the safe confines of the hospital, than leave and deal with the rest of the world.  I was thankful that I didn’t have to do that too often!

“I can hardly wait to see all the kids!  I’ve missed quite a few things, but they all seem to be understanding.”

Another issue that was very hard for me to deal with was being away from the kids.  We have told them that we would be gone a few days, and at this point we had been gone almost a month.  School was not getting done, and I didn’t care.  I was missing lots of their activities, even though it was a down time in the year between sports.

Gabbie was very sad all the time that we were gone, and Jared wouldn’t talk to me on the phone.  Elisabeth had a hard time sleeping due to the stress in her life.  Your dad almost dying was not something anyone wants their children to deal with!  At one point I just had to call someone back home and ask them to find someone to take care of my kids.

It didn’t really matter who, just that someone was with them and they were fed.  That is not what mothers do!

And we have had to deal with many issues in our kids’ lives that were influenced by the events of five years ago.  No, a three year old is not too young to be negatively influenced by such events.  No, teenagers are not so self-absorbed that they are not impacted by their father almost dying and having to come back from major deficits following brain surgery. So I had the stress of the known in Rochester to deal with and the unknown in Earlham.  It was not something that was all taken care of when we got back home, but something we have been steadily dealing with for the past five years.

“The following is a verse from the Sovereign Grace CD, Come Weary Saints. I know that you all wish I’d listen to a new CD.  I usually listen to this once while I’m driving, and then I do listen to part of  another one!  This is the last verse from “I Have a Shelter:

 

“I have a shelter in the storm when constant winds would break me.  

For in my weakness I have learned Your strength will not forsake me.  

O Jesus I will hide in You, the One who bears my burdens 

with faithful hands that cannot fail, You’ll bring me home to heaven.”

People keep commenting on how strong I have been through this.  Trust me, I haven’t been, but it has been evident that Jesus has been sheltering me when the constant winds (a.k.a. brain surgery, seizures, blood clots, fevers, blood infections, coding, CPR, more blood clots, open heart surgery) would break me.  I am hoping this lull in the storm will last awhile!”

As I read that last sentence I wrote, “I am hoping this lull in the storm will last awhile,” I now know that it did last awhile, but it was merely a lull and not the end of the storm.  For the past five years, I have always felt that God was my shelter, and often my only shelter.  I have been surprised when the storm starts to brew fast and hard again, as it was a year ago right now.  Those winds have attempted to break me, and us, but have not been able to do so.  So no, it is not my strength, but the strength of Christ in me that has prevailed.  I hope our children have learned that in Christ, they, too, can be strong regardless of what happens in their lives.  Due to these storms, my faith is stronger, Mike’s faith is stronger, our family is stronger.

From March 7, 2009:

“For the past couple of days, Mike and I have been discussing when I should go back home for a couple of days.  We had decided that I would go home today and try to come back on Tuesday.  When I got back from lunch yesterday, Mike said, “I’ve got an idea.  How about if the kids come up here for the day on Saturday, so they can see me up and without tubes.”  I thought that was a great idea!”

March 7 was a really fun day!  Mike and I had great anticipation waiting for the kids to come up!  The rehab staff was excited to get the room ready for our family pizza party, and the kids were very excited to see their dad.  Mike was ready to show off what he had been accomplishing, and the kids were duly impressed with his progress.  They even got to lay in his bed and watch Cars on the in-hospital movie channel.  It was a great day, and a great way to leave Mike as I took the kids home for a few days.

I also was leaving feeling much more confident that Mike would be okay with me gone.  I trusted the rehab staff, and his roommate, Melvin, was great.  I had also lined up friends, the Harder’s and the Schwartz’s, to check in on him.  I believe Ray and Connie stopped by as well.  He was in good hands and I was able to go home for a few days and spend a short time with the kids.

 

What follows are excerpts from Karla’s posts during these two days. Then I will give you all my take from these two days.

 

The Fog is Lifting March 6, 2009 (Karla)

….This morning the fog had lifted, as had Mike’s spirits.

Mike slept last night!  He was much perkier this morning when I got here than I have seen him in days.  Occupational therapy went much better this morning, which is good.  Physical therapy went very well!  They get them up right away.  He was walking around the therapy table, with assistance, of course.

 

Mike does not think this is real walking, but it is the first step to where he wants to be.  He also can grip with his right hand for the first time today, so, it’s only 10:30 and we’ve already had lots of progress!

I’m about to head out for lunch with a friend.  I’m trying to be gone more during the day to see how it goes before I head home.  He is managing just fine.  I can hardly wait to see all the kids!  I’ve missed quite a few things, but they all seem to be understanding.  Jared even talked to me again last night.  I am grateful for all the people who have been taking care of them for us.

 

Dr. Meyer was in today and actually smiled again.  He was glad to see that Mike was talking well and progressing in therapy.  He keeps reiterating that it is now a waiting game and we need to be patient.  I think that is getting through to Mike…

 

March 7, 2009

….Mike slept well again last night.  I’ll never make fun of another Ambien commercial again!  It really helps everything to be more rested.  He is frustrated with his inability to do what he wants to do.  He told me that I have no idea what it’s like not to be able to do things he wants to do.  He did not say it in a  mean way, just a frustrated, matter-of-fact way.  He’s right, I don’t know what it’s like, and neither does anyone close to us.   Mike’s roommate, Melvin, knows parts of it, but his abilities are different than Mike’s, so he can’t understand perfectly.  I have paid attention to how much I actully use my left hand, and I use it a lot more than I thought.  Then there is the inability to walk, or squat, or bend, or move over on the bed, or…  I don’t understand.

 

Mike’s Thoughts from March 6-7th, 2009

When Karla writes that she felt “lost” outside of the safe confines of the hospital I know what she is saying. I too, developed a strange sort of codependent relationship within the safe confines of the hospital surrounded by my caregivers and staff. I don’t expect many of you to understand that.

I too was completely unaware of how this might possibly affect our children who at the time were 16, 14, 10, 6, and 3 years old. There is no question but these events impacted our children in a big way. Our youngest who was 3 at the time still has vivid memories as well from these traumatic days and remembers when dad’s leg and arm was “stuck.” He has been an angry child for much of the past five years. In desperation we took Jared to see a Christian psychologist who specializes in children. That was one of the best moves we have made in the past five years! How is a three year old supposed to handle it when his mom and dad are gone for nearly seven weeks…when we had told them a week or so…and dad nearly dies?  We are thankful to report that he has made huge positive strides in the past year!

On the other side of the spectrum Benj the 14 year old at that time began to think of nursing as a possible career, as he saw the male nurses at St. Mary’s in Rochester taking care of me. Benj is a compassionate kid and I believe my ordeal helped him to solidify his future aspirations. Benj is currently in Haiti on a short term mission project and is a sophomore at the University of Northwestern in St. Paul, MN pursuing a nursing degree.

Now back to March 6th-7th. Keep in mind that I was still out on the entire right side of my body. Split right down the middle. The brain surgery was on Feb. 12th and it is now March 6th. The only movement I had at this time was a slight wiggle in my right big toe and slight movement in my right thumb. No leg movement. I was able to close my hand with a very loose grip. No movement in the arm yet, just the hand and only when I concentrated with all of my might. Imagine me getting excited about being able to move my thumb and big toe a quarter of an inch or less. Nevertheless, it was enough to make me say “I’m back!” I believed it in my heart and mind.

It was an unexplainable relief to find out that I would not have to be in this state for the rest of my life. Before that I did not know. I didn’t know. Little did I know then the amount of work necessary to regain even more movement.

And here is what I did at this time. Karla does not like this. But it’s the truth. In my mind I set my children on a shelf and left them there for this short and intense season of recovery. If I let my mind go toward my children I would become so emotional that I couldn’t continue.

My reasoning was thus: In order for me to regain as much as possible I needed to set my children aside in my mind. In order for them to have the best possible dad with the best possible functioning I needed to relentlessly pursue recovering through rehabilitation. So Rocky became my inner theme song. I knew that I needed to have the “eye of the tiger” for my children’s sake. Karla was my Adrian. I didn’t put her on a shelf!

I understand now why this was and is still so hard for Karla to hear. She had the uncertainties of  me going home and the days that yet remained in the hospital. We would be coming home only 19 days from today. My main focus was on myself. My main focus was not on God. It was not on my wife. It was not on my children. It was on me recovering as much as I could and pushing myself as hard as I could.

Narcissism at its finest. Or was it? To this day I do not regret my mindset during those difficult days five years ago. It was a necessary, conscious and willful decision on my part to be entirely self-absorbed. My faith in God was still intact, but not entirely without conscious wrestling with my situation as related to God’s plans and such. More about that in tomorrow’s post about the nighttime wrestlings.

We were in a big storm alright.

Karla wrote and writes:  “I am hoping this lull in the storm will last awhile.” I now know that it did last awhile, but it was merely a lull and not the end of the storm.  For the past five years, I have always felt that God was my shelter, and often my only shelter.  I have been surprised when the storm starts to brew fast and hard again, as it was a year ago right now.  Those winds have attempted to break me, and us, but have not been able to do so.  So no, it is not my strength, but the strength of Christ in me that has prevailed.  I hope our children have learned that in Christ, they, too, can be strong regardless of what happens in their lives.  Due to these storms, my faith is stronger, Mike’s faith is stronger, our family is stronger.”

Amen Karla!

Real Time Reflections from Five Years Ago #12

Evans_0066bw

Karla and I remember these three days five years ago because life was beginning to regain at least some sense of normalcy. I was moved back to the rehabilitation unit for the second time and could begin to rebuild my broken world. Order and progress were at least now possibilities, whereas in the previous week it seemed as if all of the powers of hell itself had unleashed their power and concentrated like a laser beam on me. Rather than one life threatening crisis after another it now appeared that there was at least hope on the horizon. I no longer had the undeniable sense of impending doom. Perhaps I was too weak.

In a previous post #11  I wrote that I felt and told God “I got nothing left to give. Nothing.” By this time in the saga my physical, emotional, and spiritual strength were completely depleted.  Karla wrote several blog post over this three day period as she emphasized her gratitude for the technology that made quick and wide spread dissemination of information possible (the blog had 5,790 hits on heart surgery day alone!) as well as the encouragement that poured in. She also came to understand more fully just how very close to death I had come.

 

Words of Encouragement May 3rd, 2009 (Karla)

“We have been getting much encouragement from all over the world.  While all the technology sometimes bothers me, the internet has made this possible.

When I got here this morning, Mike informed me that he had actually slept last night, which he has never said in the past three weeks.  He is speaking much more clearly today.  I personally think there is a direct correlation between his speech and the amount of sleep he gets.  He is currently downstairs getting an echocardiogram, which is standard procedure following heart surgery.

Dr. Meyer was in again this morning, but unfortunately it was after Mike left.  He is fine with him going to rehab tomorrow, so we’ll have to see how that plays out.  He will be going in a much weaker state than previously, which will probably translate into a longer stay.  Dr. Meyer also keeps reiterating that we do not know if there has been any damage done to the right side, so it will take time to see what the long-term effects are.  Dr. Fogleson was more optimistic, saying that he felt good tone in Mike’s leg yesterday, but not in the arm yet.

Mike also keeps trying to get the nurses to let him stand up and such.  I guess he thinks that since he did it before he can still do it now.  Hopefully physical therapy will work with him on that today.

It has been interesting to see where the encouragement comes from.  I am so grateful to the Smiths, who skipped District Conference to be here with me.  Another pastor friend posted that it’s like Mike and I are in the middle of a storm on a sea and everyone is shouting encouragements from the safety of the shore.  I think that’s a pretty good description!

Another friend sent a devotional that she receives via e-mail each day.  This one was from Charles Spurgeon, on Isaiah 48:10, “Behold, I have refined you, but not as silver;  I have tried you in the furnace of affliction.”  Our current circumstances definitely feel like a furnace of affliction.  In Spurgeon’s commentary, he says, “If, believer, thou requirest still greater comfort, remember that you have the Son of Man with you in the furnace.”  This is the greatest comfort, that Jesus is with us in the furnace, and in the storm, and wherever else we may be!  Thankfully we have so many reminding us of this.

I’m hoping for a good day!  Mike will be seeing many therapists, and I am looking forward to any encouraging words they have!”

Wednesday, March 4th, 2009

“I tried to sleep in, but for some reason I wake up at 5 every morning.  Not a great time to get up, for a night person!

Mike did not sleep well at all last night.  He was up coughing much of the night.  So, he is very tired today.  It will be interesting to see how rehab goes on so little sleep.  We have not seen the cardiac service yet today, so I am not sure where we are with the anticoagulent.  He cannot go to rehab until he is off of the IV anticoagulent.

We keep finding out more tidbits about last week’s surgery.  Yesterday we were told that only two places in the country perform the surgery Mike had last week, here and somewhere in San Diego.  We asked Dr. Fogleson about it and he said that he really did not think Mike would survive surgery.  I know I’ve said this before, but it is very overwhelming to think about!

On a very bright note, Jared finally decided to talk to me on the phone last night!  It had been twelve days.  He didn’t talk very long, but I was glad he did.  Elisabeth asked when I was coming home.  I told her that I was not planning it any more.  When Dad is better I’ll just show up.  She was okay with that.

It sounds like Mike is ready for me to go back in there, so I’m off.  Thanks for the continued prayer!”

(Later that day)

“Mike did make the move to rehab today, much to my surprise!  I had a friend coming to go out for lunch with me.  When she got there, I told her that all of sudden we were headed downstairs.  Fortunately she was able to wait long enough for us to grab a quick lunch at Cafe Presto.

This roommate situation is much better than last time.  Mel is an older gentleman from around here who had a logging accident and is now in a wheelchair.  He is very quiet, respectful, and interesting to talk to.  He took it upon himself to encourage Mike tonight!

We also had a group of Mennonites stop in to sing tonight.  There were probably about 10 of them and they sounded beautiful.  It made me realize how much I missed being at church the last three weeks.

Tomorrow everything really starts up.  Mike will have a schedule with the bare minimum to start out with.  As his strength builds up, they will increase his activities.  They are also watching his calorie intake make sure he is eating enough.  They did not do that last time.  I’m sure our friend Marla the dietician is glad to hear that!  The funny thing about his diet is that he needs to let people know if he suddenly wants to eat large amounts of green vegetables, as this would seriously mess with his coumadin levels!

I’m about to head out.  Since Mike has a roommate, I am not allowed to spend the night on a cot.  I am confident in the nursing care so far, which is good.  Mike is comfortable with it, which is the most important thing.  Good night!”

The Snow is Melting in Rochester (May 5th, 2009)

“I drove in this morning on very messy roads.  The temperature was the same at 6:30 this morning as it was at 9 last night.

Once again, Mike did not sleep well.  Tonight they are going to give him Benedryl to see if that helps.  He is coughing less, which is a good thing.

The occupational therapist was not very with it today.  She got here about 10 minutes late and did not have everything ready to go.  All she got accomplished was the shower, which is not much for an hour.  I think we’re going to talk to the rehab doctor about it, as Mike thought it was worthless.

Three weeks ago from this very minute, Mike was waiting for the AVM resection surgery to start.  Two weeks ago he was laying on a cooling blanket in neuro ICU with a temperature of 105 that was caused by a blood infection.  One week ago Mike was headed for open heart surgery to remove that huge blood clot from his heart and bunches of clots from his lungs.  Today is better already!

Yesterday I went to the mall for awhile to walk around and pick up a couple more things Mike needed for rehab.  I’ve been to restaurants, but apart from that, I am pretty much at the hospital.  I was surprised at how bothered I was by everyone going on with their lives while mine is on hold.  As hard as it is in the hospital, it is less emotionally challenging here.  Everyone around us in the hospital is also in the midst of dealing with a health problem.

So what am I going to do to deal with this?  Well, one thing is to remind myself of the people here who are in more difficult situations than we are.  One such person is the lady on the cardiac floor who had a heart/double lung transplant.  She has been in the hospital since October and not seen her kids since Christmas.  She is a single mom who now has to stay in Rochester for the next year.  She also has a very kind brother who has been with her the entire time.  They like Rochester so much that he has found a job and is moving her children and mother here to live permanently.  That’s commitment!

I am also going to take the advice of our friend, Randy, and take one day at a time.  It is overwhelmingly stressful to think past today.  Randy quoted the verse that says, “Therefore do not be anxious about tomorrow, for tomorrow will be anxious for itself.  Sufficient for the day is its own trouble.”  So I’ll just deal with today’s trouble, which so far is the easiest Thursday trouble yet!”

Day One in Rehab is Over (March 5th, 2009)

“Well, we made it through the first day of rehab.  What a relief that is!  And as I had hoped, this Thursday was far better than any of the previous ones!

 

Mike was thoroughly exhausted today after all this therapy.  He is not too thrilled with the occupational therapist, so we’ll see how that goes tomorrow.  It is easiest to see progress with physical therapy, so I think that is what he thinks is most productive.  He was able to take a much needed nap after lunch, and hopefully that will work tomorrow as well.  He’s out again now, so hopefully he will be able to get some sleep tonight.

 

A friend e-mailed today with the names of some people from our church during the graduate school years who now live in Rochester.  One of the couples actually worked with us in the youth program.  I called them tonight to see if they would be willing to visit Mike when I get to go back home.  It was great to connect with them after all these years!

 

I’m heading back to the Krueger’s house.  I am hoping to get in a couple good night’s sleep.  Every time someone asked Mike how his day was going, he would say that it was very uneventful.   No one knew quite how to take it.  We assured them it was a good thing.  We’re hoping for another uneventful day tomorrow!”

 

The following is a poem written by my friend Pastor Tim Trudeau as a blog comment on March 4, 2009. As you can see I have good friends with a good sense of humor.

A Tribute to a Friend 

Michael Evans is his name,
Life to him is no mere game;
He loves his children, adores his wife,
He sucks the marrow out of life.

He is a man of many talents,
Which he pursues in proper balance;
Behind a camera, on a keyboard bench,
Holding a javelin, hammer or wrench.

If the waitress is stingy with the grated cheese,
He is not bashful: “I’ll take some more, please!”
At Grandma’s Saloon or the Cheescake Factory,
He loves to satisfy his senses olfactory.

He preaches with passion, true to the Word
His zeal is evident to all who have heard.
With sharpness of intellect he parses the text,
Always faithful to the Scripture context.

He serves his church faithfully, with wisdom and wit,
Together these years, it seems a good “fit.”
Though I am sure there are times of trial or stress,
They know he desires them to toward God onward press.

If you are an Arminian, you better beware,
Mike has little patience for those who go there;
He’ll take you to task with a Biblical razor,
You’ll feel like your hit with a policeman’s tazer.

I do love my friend, though I’m hesitant to say,
In case you will think I am in a closet way gay.
I am not the only one, of that I am sure.
He has many friends believing that this trial he’ll endure.

Recently my friend nearly died, as you know,
And if he had left us, to heaven he’d go;
But God has great plans for him, of that I am sure,
Calling many to follow Him, with hearts that are pure.

Tim Trudeau

After getting moved to rehab for the second time and finishing my first full day there, it had now been three full weeks since I had undergone the original brain surgery. It was very nice to have made it through a Thursday without any crisis, even though at the time I wasn’t very much aware of time. Restless and mostly sleepless nights tend to cause the days and weeks to blur together. But here are the facts: First Thursday brain surgery. Second Thursday blood infection. Third Thursday blood clots and coding. Fourth Thursday completed my first full day in rehab without a hitch!

I was still entirely out on the entire right side of my body and was still having difficulty speaking and word finding, but at least I was still alive to keep fighting…even if I felt extremely weak and drained.

I also remember my roommate Mel and remember him as a gift from God for this time in my life. He was an excellent roommate. He was encouraging, respectful, and kind. As Karla mentioned he was partially paralyzed from a logging accident and was trying desperately to regain some of his lost functioning. So every day we would leave the safe confines of the room and go off to work…the hardest kind of work. I recently called Mel  for the first time to see how he was getting along. We had a very nice chat for fifteen minutes or so. He does not cut logs any more.

Here is one of the many mini epistles that my friend Pastor Randy Anderson wrote) during our many days away from home:

Dear Karla and Mike,
I am so happy to hear about Thursday — I hope you will soon be remembering March 5th (which is my mother’s birthday), as trend smashing Thursday. After three shattering Thursdays a Thursday of therapy and progress. A word of encouragement from the Lord is found in 1 Peter 1:6,

1 Peter 1:6-7 6 In this you rejoice, though now for a little while, if necessary, you have been grieved by various trials, 7 so that the tested genuineness of your faith – more precious than gold that perishes though it is tested by fire – may be found to result in praise and glory and honor at the revelation of Jesus Christ.

Notice that the ongoing genuineness of your faith — which is clearly there, and now with less dross in it than ever before; now that it has been freshly tested by fire — painful burning fire as you know 10 times better than I — this has and continues to work something in you more precious than gold — the metaphor for more precious than anything earth has to offer — and the real value of this — of all that you are going through and all that is happening so as to refine and deepen that faith — this is going to come to light “at the revelation of Jesus Christ…’

Jesus will get all the praise for having taught you to trust Him deeply and fully — life’s greatest accomplishment. The Lord Jesus has you both in daily advanced therapy — advanced training. Why you? I haven’t a clue. He signed you up — no one voluntarily signs up for where you are.

Peter is telling me that what I read in your blog each day — and I do read faith there — it is more precious than gold.

It will only be ‘for a little while’ and it will even seem that way

“When we’ve been there 10,000 years
bright shining as the sun.
We’ve no less days to sing God’s praise,
Than when we first begun.

Randy

(Karla’s) Real Time Reflections from Five Years Ago #11

DSC_1212

This is the 11th installment of Reflections in Real Time on the Five Year Anniversary of Mike’s brain surgery to remove an AVM [arteriovenous malformation] from the left frontal lobe of Mike’s brain and all the drama that came with it.

(Karla Writing)

Looking back at March 1st  and 2nd, 2009 continues to flood my mind with memories.  A couple of things stand out though.

The first is that breaks from the hospital were very important.  I know of others that never left the hospital, but it was necessary for my sanity.  Early on in this whole adventure, Denae and Connie decided that they were going to make sure that I got out of the hospital, which the nurses also encouraged.  I still remember the first day they came down to take me out for lunch.  I had been staying at Connie’s house for a few days, and was great friends with Denae’s sister-in-law but hardly knew Denae at all.  I didn’t really think we would have anything to talk about.
They were clearly not concerned.  Denae has kids, and so do I, so that in and of itself provided plenty to talk about.  Denae and Connie also just really wanted to love me.  They wanted me to know that even if they did not know me well, they cared about me.  Yes, I know where we went to lunch and what I ate:  Pappageorge’s and a grilled chicken sandwich and fries.  We weren’t gone long, but it was long enough to catch my breath.  Denae was a person who was not fazed if she made the half hour or so trip from her house to go out for lunch with me only to have to wait a long time because Mike needed me with him.  She was always totally focused on what would encourage me.  She was really there for me on a regular basis, and I was grateful that God provided someone near to Rochester like that.  I now count her as MY friend, not just Ann’s sister-in-law.
Another thing that stands out is the sacrifices that many from a distance made.  My sister who lives in the Cities came down almost every weekend that we were in Rochester.  Sometimes she hung out with us, and other times she took kids to do something fun.  Her husband also came on the day that Mike had the emergency open heart surgery.  Which was a Thursday.  During tax season.  And he’s an accountant.  It was a huge sacrifice on his part!  He did bring stacks of work to do, but I have no idea if he got any work done.  My parents also made multiple trips up to visit, bring kids up, take kids back. Whatever we asked of them in that regard they did.
We also had two couples who made sacrifices to visit.  Following the heart surgery, Randy and Shirley Anderson stopped by “on their way” to the Free Church Central District conference in Des Moines.  by my calculations it turned the four hour trip into a seven hour trip.  And then Mike did not even remember that they had stopped by!  Even in spite of our long conversation about how much Mike enjoyed the canned pears, which I have never before seen him eat!
On the blog five years ago I mentioned a second couple, Steve and Marla Smith, who skipped the same conference and came to Rochester instead.  What I did not put in there is why.  Marla had called me a couple days before and asked if it would be helpful to have them come up.  At that time I told her that I was doing fine, there had been a lot of people there, and I thought I just needed time to myself.  Thankfully she tried again.  When everyone headed home on Sunday evening, I experienced what I had every weekend prior to that.  I had been doing well and when everyone left I lost it emotionally.  I really needed the encouragement of close friends through these extremely trying days.  So Steve and Marla came up for two days.  The dietitian Marla took one look at Mike and said, “He needs protein!”  She then proceeded to find out how to get him more protein.  This came at a crucial time when he was down about 50 pounds.  The other thing that was so beneficial was that Steve and Marla just talked to me.  When we went out for lunch, I asked about how their son’s college search was going and how their daughters were.  After not too long I told them that I was sorry, but my mind was back on Mike.  It was so good to talk about something other than health issues, and good that I felt free to tell them when I couldn’t focus on anything but Mike.  They did not make me feel self-centered; they just wanted to do what would be helpful to us.
Finally, it was so hard to tell Mike over and over what had happened.  The amnesia medication finally wore off and he grasped what he had been through.  It was an early morning conversation that produced a lot of tears.  He was also in so much pain from broken ribs and having his chest cracked open that I think it made it a lot worse.  He was so weak and emaciated that I began to wonder if he would have it in him to fight back.  I should have known better, because that competitive nature never goes away.  It was just insufferably hard to watch my husband suffering so much!
Mike’s Take on March 1st-2nd, 2009
I remember some of the events of these two days. However the amnesia drug was still continuing to work its way out of my system. For example, Randy and Shirley came to visit with me on that day and Karla and Randy and Shirley all tell me that I talked with them for an hour and a half. But I don’t have any memory of their coming to visit me at all, let alone carrying on a conversation of any sort! Though, Randy insists to this day that he was there and was his usual jovial, entertaining self. I do, however, vaguely remembering talking about canned pears, and how much I enjoyed eating them, even though I had never downed one in the previous twenty-two years of marriage!  Weird.
I also remember Steve and Marla coming to visit and Marla’s mother hen instincts kicking in. Marla is a dietitian and upon seeing my emaciated state said that I needed more protein. I had lost a bunch of weight by this time and didn’t have much of an appetite yet. Apparently the human body devours fat and muscles as it seeks to repair itself. Muscle is big on protein and mine became very small. Much of the weight loss was due to muscle loss.
Watching Marla speak with the nurses and others was welcome entertainment for me as I was still unable to communicate very much and was still entirely “out” on the right side of my body. It was very good for me to be able to be distracted and humored by her for by this time I was feeling all-consumed by this ordeal.
I also remember distinctly talking to Karla about what had happened to me on Thursday. She repeatedly had to tell me what had happened. But there was a moment when the amnesia medication had sufficiently left my body and I got it. I understood what she was saying. And it was overwhelming. She told me to look down at my chest, which I did, which corroborated everything she had been telling me over and over again. The tears flowed as I came to understand all that I had put Karla through, how very near to death I had been, and just how much effort it was going to take to get back to my old self. It was extremely frustrating to be completely out on the right side of my body, high degree of difficulty in word finding, and now the pain of broken ribs and open heart surgery.
I don’t remember if I said it out loud or not but I remember saying to God very clearly: “I got nothing left…nothing…my own strength, (muscles) emotional strength, spiritual strength, mental strength…nothing.” I didn’t know if or how I could ever bounce back from this latest setback. But Karla’s continual presence was strength giving in every way. As I watched her in action I lived vicariously through her in a sense. I lived off her faith. I lived off her strength. I lived off her positivity.
I’ve said it before and I will say it again. I did not have any profound thoughts of God that came to my mind throughout these 46 days away from home. What was in the well was in the well. But I was wondering how much more God could possibly ask of one man.
I also remember trying to be funny after I had made it through the tears after the aha! moment of recognition of all that had occurred since the previous Thursday. After looking down at my chest and seeing the incision there was no denying it. I deadpanned to Karla “Oh, that will probably set me back a couple of weeks!” knowing in my mind that it was much more serious than that. She says it wasn’t funny and didn’t know I was trying to be funny. So I told her tonight that I had meant that to be funny. In my heart of hearts I had intended that to be hilarious. A dry sense of humor I guess.

(Karla’s) Real Time Reflections from Five Years Ago #10

The Wailing Wall
The Wailing Wall

(Karla) I’m back to blog on the events of the two days following Mike’s emergency open heart surgery.  Mostly they were days of waiting. Waiting to see if Mike could still move his left side, which had not been affected by the brain surgery (He was still entirely out on his right side).  Waiting for the medication to work that would raise his blood pressure so that he could get out of the cardiac ICU.  Waiting for tests to be done to be sure that everything was as it was supposed to be.

Waiting to see if bacteria grew in the fluid taken from his head wound, which would indicate infection and possibly lead to another surgery.  Waiting for Mike to wake up so I could tell him what had happened.  Waiting for the medication induced amnesia to wear off so that I could quit retelling Mike what had happened!

So what did I do during all of this waiting time?  Good question!  On these days I had a lot of family and friends around, which is a very good thing!  They kept the conversation going so that my mind was occupied.  I am one of those people who is always thinking about and analyzing everything.  At this point, I was wondering what was going to happen next to set us back, and thinking that surely we had finally hit bottom.  I was also wondering how we would have to change the house around to make it ready for Mike to come home.

I was also counting my blessings.  I was so glad that Luke and Benj had come up with my parents.  I was missing my children so much! It really showed me how much they loved their dad.  Those of you with children know that they all have different personalities.  Luke and Benj are pretty much opposites. When Luke was at Mayo the first time, he made it clear that he was not a fan of hospitals.  I get that, as I generally avoid them if at all possible as well.

On the other side of the coin, Benj is not bothered by them at all.  He is at ease when talking to people in the hospital, and does not mind all the gross stuff.  When I called home to tell them what had happened on Thursday morning, I asked to talk to Luke.  I made it clear that if he wanted to come up he could, but if he didn’t want to that was fine, that I would not think less of him or ever hold it against him. The fact that he came showed me how deeply he did care, even if he is not as emotive as some of our other children.

I also went over all the details that needed to be tended to.  I was responsible for so much, both in Rochester and at home.  It is truly a grace of God that nothing major fell through the cracks.  I was just reminded last fall by our band director that I had called and told him that Luke and Benj would not be at the jazz band contest that Saturday.  Luke was the only pianist and Benj was probably the 2nd chair trumpet that year.  It was Mr. Sletten’s first year of teaching and he responded so well!  He was a great encouragement to our family.

This is a paragraph from the evening post on February 27, 1009:

“I apparently did not get the gravity of the situation on Thursday morning.  I know blood clots in the heart and lungs are very dangerous and can be fatal, but I just figured, we know they are there, just remove them.  Dr. Fogleson was almost gleeful to see Mike today and said that he really did not think he would be seeing him today.  We are grateful that God chose to answer all of our prayers in the way we wanted Him to this time.”

I truly thought that it they should just take care of it.  If they couldn’t, who could?  I still attribute it to being in shock, as well as being the peace of God which passes all understanding.  Philippians 4:4-7 says, “Rejoice in the Lord always; again I will say, rejoice.  Let your reasonableness be known to everyone. The Lord is at hand; do not be anxious about anything, but in everything by prayer and supplication with thanksgiving let your requests be made known to God.  And the peace of God, which surpasses all understanding, will guard your hearts and your minds in Christ Jesus.”

This did not hit me until sometime the following summer when I was reading a book by Martyn Lloyd-Jones.  He says that the peace Christians feel in such circumstances is this special gift of God for handling hard situations.  Countless people had made our requests known to God.  Many of our friends had not had peace on the day of heart surgery, but I had.  So I see it that the shock was a gift of God.

On that Friday, Mike also had ultrasounds done of his arms and legs to check for new blood clots.  I have never really talked about what prompted this.  In the previous two weeks in the hospital, I had discovered that it was helpful to Mike for me to touch him when I was talking to him.  So as he came out of the heart surgery I did what I had been doing.  But this time when I rubbed his arm he became visibly upset and said that it hurt.  This was his “good” arm, and was very distressing to me.  I immediately told the nurse, and they ordered the ultrasound.  In the meantime, I asked anyone that went in there to please not touch him as for some reason he was in pain.  Not everyone listened.  So a word to those who are with people in crisis.  Please respect their wishes and do what they ask you to do.  They are the ones who know their loved one best and it is hard enough for them to do what needs to be done without others not heeding what they say.

My only comment from Saturday, is that it was more of the same.  More waiting, more explaining to Mike what had happened, and more coming to realize how close to death Mike had been.  None of the doctors thought he would survive.  That is quite unbelievable at a place like Mayo.

I don’t feel like I have adequately expressed the emotions of these days.  But our friend, Randy Anderson, did in comments he left on the blog.  I don’t normally like to compare myself to the most highly esteemed people in the Bible, but it really felt this bad.  So I’ll leave you with Randy’s words.

Dear Karla,

Reading the blog this past week has been a little like a guided bus tour of Job chapter 1 as relates to Mike’s body.

While he was yet speaking (while she was writing her blog) there came another and said,

Mike has had some small seizures.

While he was yet speaking (while she was writing her blog) there came another and said,

Mike has spiked a high fever — we don’t know why.

While he was yet speaking (while she was writing her blog, there came another and said,

Mike has contracted an infection in his blood we don’t know from where.

While he was yet speaking (while she was writing her blog) there came another and said,

Mike has a blood clot in his leg.

While he was yet speaking (while she was writing her blog) there came another and said,

Mike has coded and is being prepped for heart surgery.

While he was yet speaking (while she was writing her blog) there came another and said,

The heart surgery went well but…..

Karla, my brother passed through these kinds of days with his son 16 years ago now. He was telling Mike about it while we traveled to T4G (Together For the Gospel Conference) this past spring. In the midst of it while standing outside of Children’s hospital screaming at God whether out loud or merely in his mind he doesn’t really remember, he and his wife’s ‘life verse’ — when they were in high school you had to have a ‘life verse’ and so they had one — but it came to him with power.

Proverbs 3:5-6 5 Trust in the LORD with all your heart, and DO NOT LEAN ON YOUR OWN UNDERSTANDING 6 In all your ways acknowledge him, and he will make straight your paths.

My brother heard the Lord say to him through that text– you are so distressed because you are bent on figuring out what all of this is about — well, you can’t, and I told you not to — I told you not to lean on your own understanding — I told you not to try figure it all out. Rather I told you to trust me with all your heart.

Remember this Karla, ‘He did not spare His own Son but delivered Him up for you and for Mike…’

You can trust Him with all your heart and be safe in Him without understanding why any of this is happening.

Shirley and I love you both.

Randy

Mike’s take on those two days:

Karla wrote in part: “…Mike still doesn’t know what happened.  He is not going to believe this one!  I am feeling bad for Dr. Meyer (Mike’s neuro-surgeon).  He came in and just shook his head.  He said that he has never seen anything like this…”

“Dr. Fogleson (the surgical fellow) was almost gleeful to see Mike today and said that he really did not think he would be seeing him today.  We are grateful that God chose to answer all of our prayers in the way we wanted Him to this time. Dr. Fogleson is the doctor we see most often.  If anything happens and he is near, he is there immediately.  We have repeatedly made it clear that many people are praying for him as well when they pray for Mike.  Today he said that he has even prayed for Mike. 

Dr. Meyer commented that if we had taken him home for rehab he wouldn’t have survived.  Then later the nurse said that in any other situation he would have died.  He told us that Dr. Sundt specializes in this kind of surgery and he “just happened” to be on call Thursday.  We all know that he did not just happen to be on call… Dr. Meyer said that he expects this to set him back 2-3 weeks neurologically, so basically back to where he was immediately following AVM surgery…I should probably show a timeline of what happened so that people can see all that God did.  I’ll work on that sometime.  For now, suffice it to say, all of our days are numbered before one of them came to be, and Mike’s days are not up yet.

Mike’s take on those two days:

I really have no vivid memories from the two days following the emergency open heart surgery, just a brief moment as they brought me out of the anesthesia for a neurological check with the ventilator still in. It was creepy.   I would have to say that the amnesia drug they gave me did its job…very well. But even as I was unconscious and very near to death God still managed to micromanage the entire universe. I am also coming to understand and appreciate much more deeply the toll this trial took on Karla as we are “reliving” these days in real time plus five years.

(Karla’s) Real Time Reflections from Five Years Ago (#9)

Mike and Karla

February 26, 2014 (2009)

This is the ninth in a series of blog postings we are doing in real time plus five years post brain surgery. (click on the colored link to see a summary post Five Year Anniversary ).  Portions of these recollections will be included in the book I am currently in the process of writing. This is the day the music almost died.

(Karla writing)

Here are the posts from this day, five years ago.  If you take the time to read them, please notice how matter of fact and void of emotion they are.

Back to Surgery

Just a brief update.  Mike was up at 6 this morning and had a brief seizure.  This was followed by a longer seizure.  They gave as much ativan as they could and moved him back up to neuro ICU.  Somewhere in that process they discovered that his blood pressure was low and the heart was not working right.  The ultrasound showed blood clots in two parts of his heart and something else in a third.  They think that the filter may have broken loose and that is the unknown item.

I am posting this at about 11 a.m. on February 26th, and they have just taken him into surgery.  If it all goes routinely, it will be 4-6 hours long.  They will remove the clots, the other thing, and fix what they think is a hole in his heart, if need be.  The doctors use words like unstable, critical, and high risk.  Not good.  Our optimistic Dr. Fogleson said that this is an extremely serious situation.

We know that God has this entire situation in His control.  We ask that you would lift Mike and the surgeons up to our God, the father of our Lord Jesus Christ.

Out of Surgery

These next posts will probably be brief and to the point.  You might wonder why I even bother.  One reason is that we have such a great number of people following this, and then praying.  The other reason is that now I just have to wait.  I might as well let others know what’s going on here.  The surgery went very well.  They were able to do everything they wanted to do.  They removed one very large clot and several smaller ones.  The filter is in place, so they do not know where the clots came from.  He had very low blood pressure for four hours, so there are concerns regarding the kidneys from that.

There is also now an issue with the head wound.  It looks infected today for the first time.  The neurosurgeons will aspirate it and may end up going in again and clean it out.  That may happen as soon as the cardiac people allow it.  Dr. Meyer is dumbfounded by all this and said that he has never seen anything like it.  He also commended the cardiac surgeon’s quick work, saying that if it had not been so fast Mike would be dead by now. On the positive side, the swelling in the brain is almost gone and all the blood from the AVM surgery is gone, which explains the great progress he was making in rehab.

He will be on the ventilator for about the next 24 hours.  After that they will wake him up and see how his neurological functioning is.  Between now and then we can just wait and pray.

As I read what I wrote five years ago, my words do not even come close to conveying what I was going through.  If brain surgery day was hard, and blood infection day harder, heart surgery day was off the charts hard and almost unbearable.  One of the things that I repeatedly told myself during this whole ordeal was that there were so many more people who had it worse.  So many more wives and children suffering more than we were.  So many more people in worse condition than Mike was.  Especially at Mayo. On this day, I truly felt that I had it about as bad as anyone in the world at that moment in time.  I didn’t stay in that thought long, but for awhile I was there.

I never really relayed all the events of that day.  Before I go into it all, as you read this, please don’t judge me.  You never know how you will react in a situation until you are in it.  As I have looked back over the past few years, there are some things that I have felt extremely bad, even guilty, about.  I shouldn’t have.  I didn’t do anything wrong.  In retrospect it just looks like rather bizarre behavior to me.

Some background on the events of that day. Mike had wanted me to go home to see the kids the night before because a storm was coming.  I had told him that I would not go home until he could push the button himself to call the nurse.  When you are in rehab, nurses try not to bug you all night long.  Once you are in bed for the night, they do not come in again until 7 in the morning unless you call.  Up to this point, Mike had not been able to push the button.  So when he woke up during the night and asked me to call the nurse because he wanted something for his back pain, I not so nicely said, “If you want me to go home tomorrow, push the button.”  He did, and took a single Tylenol for the back pain.  Yes, a storm was coming for sure!

My initial post said that Mike was up at 6 and had a brief seizure.  It seemed like an eternally long seizure, not brief.  And I don’t really know that it was short.  I know that they gave him 4 doses of ativan, which was all they could give him, so it was probably really quite long and he was basically just knocked out afterward.  Oh, and his heart quit beating and he wasn’t breathing.  I don’t really know if that in and of itself would stop a seizure, but I would think so.  After imploring the nurse to move more quickly, asking whether or not he was breathing, and the crash team coming in after she had called a code, I left.

At this point you may have a few questions.  I know what they are because several people asked me these questions.  “Why did you leave?  How long did they work on Mike before his heart started beating and he could breathe again?  What exactly did they do to him?”

This is where you need to not judge.  I know people who stay in the room when this sort of thing happens.  I know people who do not leave the side of the person who is in the hospital.  I am not that person.  I figured that the ten or so people who were in the room trying to figure out what was going on did not need a hyperventilating wife around.  Hyperventilating wives is not a normal occurrence in the rehab unit.  So once again I had no place to go.  Since every spare person was in my husband’s room, they sent me to the nurses’ break room to calm down.  I eventually came out.

I also have no idea how long they worked on Mike.  I do know that they did CPR and broke ribs in the process.  A couple years after the whole ordeal, we finally asked for more details.  Specifically, the doctors all kept saying, “Well they had to use pressors on you, which is very serious.”  We had no clue what these were.  After the fact we learned that pressors were used to keep Mike’s blood pressure up.  Due to the clots that were in his heart and lungs, he hardly had a blood pressure.  We now know that most doctors would use a couple pressors, and if that didn’t work, the person died.  The critical care doctor working on Mike used 5.  Five is an unheard of number of pressors to use.  Every doctor we saw for several days commented on what amazing work this critical care doctor did.  I don’t even know his name.  He had a South African accent, but I only met him once.  So all I really know is what they did worked, and they quickly moved him back to the neuro ICU to figure out what was going on.

In the midst of all this, I was trying to get ahold of someone to come stay with me.  The friend from Iowa who was there was getting ready and didn’t hear her phone ring.  I finally got ahold of Connie Krueger, who I was staying with, to see if she would come up.  She called Denae Harder, a college acquaintance who became a good friend, and they both came to the hospital, even as the snow was bearing down and Denae’s kids were home from school because of the storm.  I also had the pastor who our Iowa friend was staying with show up, as well as my pastor from my childhood who now lives in Rochester.  So we had small army to gather to hold me up through all this and to pray for my dear husband.

I also made several other phone calls.  To my parents, who said they would leave immediately.  My sister took the older boys in to Des Moines and they came up too.  The husband of the friend who was already up there with me came up, as well as my father-in-law and friends from church.  All in a terrible blizzard.  I was very grateful they all arrived safely!  I also called several friends who told me afterwards that I sounded like I was in shock.  I am sure that I was.  I don’t know how else you get through something like that.  I will say that my calls left many of them very concerned.  One friend who is a doctor could hardly make it through the day, crying out of concern for us.  Our pastor friends talked to doctors in their churches and were told that Mike would likely die.  One friend told me that she was rehearsing in her head what she would say to me when she saw me at Mike’s funeral.  Do those words hit you anywhere close to how they hit me?  Mike’s funeral. I have tears running down my cheeks now.

After I made these phone calls, I went back in to talk to the doctors.  They were all visibly shaken, which is not normal for these doctors even in bad situations.  They still did not know what was going on, and would let me know when they did.  By this time Denae and Connie had arrived and were listening with me.  Always good to have extra ears!  I was also very shaky and weak feeling.  So any guesses as to what I did next?  Again, don’t judge.  Yep, I went to the cafeteria and had breakfast.

My husband is literally dying, and I went to eat.  Who does this?  I can’t remember if someone suggested this to me, but that’s what I did.  And this is what I have felt guilty about for 5 years.  Why would I leave my dying husband for food?  Granted, it took care of the shakiness, but someone could have gotten me food.  I vaguely remember saying that I would go get it myself, but it still seems bizarre to me.  I attribute it to being in shock, and having reached the threshold of intensity that I could handle. So Denae and I went and had breakfast.  We weren’t gone long, and it was enough of a break for me to catch my breath for the next round of stress.

And it began again immediately.  Upon getting back, I found out that the doctors thought surgery was the best option.  There were two surgeons in the country who do the surgery Mike needed, and one of them “just happened” to be at Mayo.  He also “just happened” to be the surgeon on call that day.  And “just happened” to be between surgeries so he could operate on Mike.  Dr. Meyer came in with a surgical fellow that I could barely understand who explained what they planned to do.  He explained the risks involved, that if Mike survived the surgery, which was a big if, he could end up permanently paralyzed on the right side as he currently was, completely paralyzed, or even in a vegetative state.  They did not know how long he had been without oxygen or if the surgery would be successful.  They did know that his kidneys had shut down, which is the first in the order of organs that shut down when there is a lack of oxygen to the body. They needed my permission to do the surgery.  I asked Dr. Meyer what he thought and he said that Mike was young and they should do everything possible.  I then signed the long form without reading a word of it, something I never do.

After they left, I broke down.  I explained to my friends that before the brain surgery, Mike and I had talked about what I was supposed to do in a situation like this.  Well let me tell you, there is no such thing as “A situation like this.”  It is not a black and white issue, which is how I like issues to be.  Mike had told me that if a situation arose that would leave him in a vegetative state, I was not to pursue medical treatment.  I wondered out loud if that is what I had just done.  The pastor, who was the friend of a friend, Randy Charlton, gave excellent counsel.  He told me that Mike had never envisioned this situation and could not have known what he was asking of me.  He told me that Mike’s days were in God’s hands, which is exactly what Mike and I believe, and that it was up to God to take care of it.  If this was the day when Mike’s number of days were complete, God would take care of it.  So I was at peace with the decision that I had just made.  I then asked if I could have a minute with Mike before they took him to surgery.  They said to make it quick.

So I went in and laid hands on my husband and asked God to heal him.  And if he was not to be healed, please take him quickly and painlessly.  And then I left Mike in God’s hands, which is where he was whether I verbalized it or not.  I was very thankful for the small army that sat with me throughout the day and the group that arrived that night.

As you know, since Mike is still alive, the surgery was successful.  Mike is not upset with me for my bizarre behavior, and didn’t even know about till last week.  Once he was settled in his room by late afternoon, I was hungry again, so my parents took us to the Canadian Honker for supper.  Yes, once again, I know where I ate.  My parents, Luke and Benj, my sister Betsy and brother-in-law Brandon, and a friend from Iowa.  We had a brief respite from the stress and then back to the hospital we went.  I will say that it was hard to leave Mike there that night.  He was on a ventilator and looked like he was not alive.  There were two nurses monitoring him all night.  And my parents had gotten a couple hotel rooms across the street from the hospital, so I would be close.  I was able to sleep and be back there first thing the next morning.

I am worn out after writing this.  We have said it before, but it all feels so real to us still.  I remember things as I see them, so I can still see all these events unfolding in my mind.  The pain is different now, because of all we have been through since, but I understand it more.  It has shaped me and is a part of my life.  And now I can cry and move on.  Today Mike and I went out for lunch to celebrate five years of life that looked like it wasn’t going to be.  One of our kids asked why they didn’t get to celebrate too.  So we said we’ll do that this weekend.  I am so thankful that God miraculously spared Mike’s life and that we are where we are today!  I love you, honey!

Mike’s take on that day: An amazing mercy from God and an amazing wife! I love you too honey!

Real Time Reflections from Five Years Ago #8

Originally posted on Mike Evans' blog:

DSC_1160 If you have been following these postings for the last couple of weeks you will know that this is the 8th in a series of postings Karla and I are doing in real time plus five years to the day of my having brain surgery ( Five Year Anniversary )  to remove a large   AVM  [arteriovenous malformation] from the left frontal lobe of my brain.

Today’s posting includes the events of Feb. 24th and the 25th, 2009. I have included nearly all of the text from Karla’s postings from those two days.  It was God’s mercy and intricate orchestration of all the upcoming events that are the reasons I am still alive today.

Five years ago today was my first blog entry following the brain surgery and blood infection. As you can see this post included 104 words that took me one hour to dictate with Karla…

View original 1,410 more words

Real Time Reflections from Five Years Ago #8

DSC_1160If you have been following these postings for the last couple of weeks you will know that this is the 8th in a series of postings Karla and I are doing in real time plus five years to the day of my having brain surgery (Five Year Anniversary)  to remove a large  AVM [arteriovenous malformation] from the left frontal lobe of my brain.

Today’s posting includes the events of Feb. 24th and the 25th, 2009. I have included nearly all of the text from Karla’s postings from those two days.  It was God’s mercy and intricate orchestration of all the upcoming events that are the reasons I am still alive today.

Five years ago today was my first blog entry following the brain surgery and blood infection. As you can see this post included 104 words that took me one hour to dictate with Karla patiently bearing with me. Karla tells me it is ok to let you all in on the truth that those who knew Karla (including me) at this time would not have characterized Karla as a patient person. I really do love my wife!

Mike Speaks: Finally! (February 24, 2009)

Where does one even begin to tell the tale?  Let me start by thanking all of you for your tremendous support, encouragement, prayers and blog comments.  Of course, I am only beginning to read those.  My brain is still somewhat foggy.  After expecting to spend 2 nights in ICU, to have spent 11 sleepless nights there is beyond comprehension.  I am grateful to finally have the surgery and blood infection behind me and be heading off to rehab sometime today.  By the way, it took an hour to dictate this with Karla typing, just so you know how far I still have to go.

Karla’s post from February 24th:

Another Rough Evening  

Just when I think we’ve turned the corner, something else happens.  During physical therapy, Mike started to feel funny, then proceeded to have a seizure.  He was standing at the time, and thankfully the therapists told him to sit down just before the seizure started.  He rested for awhile, and then sat up to eat.  After eating, he wanted to sit in a chair for awhile.  Shortly after he sat up, he had another seizure.  They gave him a shot of ativan, so he slept for quite awhile.  They do not have any reason yet, but it may be the new antibiotic he started this morning.

I usually do not read all that drug information they give, but happened to this morning.  One of the possible, but unlikely, side effects is seizures.  This medication may have lowered his seizure threshold even to allow seizures.  I told the attending, who then told our one of our usual doctors.  He came in and told him that the attending had thought of this.  I told him it was actually me, which got a laugh out of everyone.  He is now back on the previous antibiotic.

They have also started him on a second anti-seizure medication.  Hopefully these two changes will take care of the problem.

 His day is scheduled to start at 7:30.  He is very much looking forward to getting dressed in real clothes!

Mike was initially in a room with another man, as there are no private rooms available.  He had a terrible cough and had the t.v. on all the time and Mike was not able to concentrate on what the various therapies.  We were able to get a different room that currently does not have anyone else in it.  It is to be filled last, but he could end up with a roommate.  I told someone today that we needed to pray for all those people who could possibly end up in here, that their progress would be so good that they would not need rehab!…Off to sleep in the lovely foldout chair they brought me!  This will be a new experience.  You’ll be hearing from me tomorrow.

 Finally! A Decent Night’s Sleep (February 25th)

After all that went on last night, Mike was finally able to get a good night’s sleep.  He went to sleep shortly after 10 and didn’t wake up till it was medicine time.  It looks like we have a reasonable idea as to why the seizures occurred yesterday.  Mike’s dilantin levels were very low, probably due to the antibiotics affecting it somehow.  They have put him on a different medication for seizures and a very high dose of dilantin today.  He has had occupational therapy and is at physical therapy right now, and everything appears to be going well.

 Dr. Meyer was in this morning and was very encouraging.  He said that he goes longer between visits at this point so that he can see improvement, and he definitely did this morning.  This was in spite of Mike having seizures last night, followed by lots of medication.  He was also pleased to see the movement in his arm and leg.  Dr. Meyer is now making comments about ending up with excellent function in both limbs, which is really a strong word from him.  He also said that hopefully Mike will be able to be entirely off seizure medication after a year or so.  Mike was also happy about that. A friend of ours posted the following verse on the blog, and this is what was going through my mind last night.

 James 1:2-6 2 Count it all joy, my brothers, when you meet trials of various kinds, 3 for you know that the testing of your faith produces steadfastness. 4 And let steadfastness have its full effect, that you may be perfect and complete, lacking in nothing. 5 If any of you lacks wisdom, let him ask God, who gives generously to all without reproach, and it will be given him. 6 But let him ask in faith,

That’s at least part of what this whole ordeal is about, perfecting our faith.  And hopefully the faith of our children and other family members and friends and who knows who else.  So we’ll just keep trying to count it all joy!

Mike’s take on those two days, Feb. 24-25th, 2009:

I remember that it felt very good to finally be in the rehabilitation unit after enduring setbacks and discouragement. I felt weak going into rehabilitation after fighting off the blood infection. I also remember my roommate who had a terrible cough and Karla advocating for me with the nurses that I needed to be able to focus and rest well, none of which would have been possible in that room. She was able to secure another double room just down the hall that was empty. Keep in mind now that if there had been another person needing to enter rehab that day or the next Karla would not have been allowed to stay in the room with me overnight…for the next two nights, which is a crucial component to God’s micro-managing of this entire ordeal. As you will see in tomorrow’s post by Karla the 25th is the last memory I have for a few days. In the rehab units patients are not hooked up to any monitors.

I remember having the two seizures on the 24th of February. I remember thinking to myself “I’m not supposed to have these anymore! That’s what the surgery was for!” I remember going “out” for both of them.  The kind of seizures I had were like an out of body experience. I realized what was occurring but was not fully aware and completely unable to stop. It is the most helpless feeling in the world, next to nurses trying to murder me when I was on the psychotic drug to lower my blood pressure and sleepless nights in the ICU. This led to a phenomenon called ICU psychosis. I think of myself as a fairly stable person psychologically speaking. I assure you that this is a very real phenomenon. I experienced it with great intensity…as real as anything I have ever experienced, or seen, or tasted, or known.

I make this disclaimer about the state of my mental health so that when I share this next memory you will not dismiss me as an outright lunatic. You see, Feb. 24th is also the day I began to experience an overwhelming sense of impending doom. I’m not sure if this began before or after the seizures but I can tell you it was real. I just knew that something awful was going to occur but I didn’t know exactly what or when. I don’t think I shared this with Karla but it was there. And it wouldn’t leave me. I have never experienced this before or since but it was there and rightly so as we will see what happens early tomorrow morning.  My last memory was on the night of the 25th complaining about a pain in my back. The nurse asked if I would like two Tylenol. Karla encouraged me to take two. I said one would be fine. The source of the pain, in retrospect, was not something that could have been helped even by taking two Tylenol.

Karla will be writing the bulk of these next “real time” postings and updates.

The Human Condition and all that Pertains to it

Follow

Get every new post delivered to your Inbox.

Join 591 other followers