I keep thinking that being home will be relaxing, but it’s not! I envision baking cookies, reading to the younger children, and playing games with the older boys. I shouldn’t be surprised that it never works out that way, but I always am.
I arrived home Sunday night in time to go to the boys’ basketball banquet. It was great to see people from home and eat homecooked food! However, less than an hour before arriving home, I learned that Luke had gotten the stomach flu in the early morning hours, so he wouldn’t be going. I attributed it to the crazy late night trip to Mayo on Friday/Saturday, but then Elisabeth got sick Monday morning. That definitely took care of relaxing!
One of the most common comments I get is that it must be good to be home. While I am thrilled to see the kids, it is actually “easier” to be in Rochester. I put that in quotes because it is not easy, just easier. Since Mike cannot always communicate well, I am always concerned when I am not there. I care about him much more than anyone there does and feel a strong responsibility to be his advocate.
On that note, I “fired” the occupation therapist today. That was a tough one to do from home! The occupational therapists work on the activities of daily living, and particularly work with Mike’s right arm. We had consistently not been happy with what she was doing, so I finally decided Mike had had enough. It is too critical of a time to just put up with someone. Talking to her supervisor was very hard, especially when she told me that they didn’t think Mike had a problem with the therapist. I am hoping that tomorrow goes much better in that area, so we’ll see. Mike said that the other areas of therapy went well today. I am hoping to see a lot of progress when I go back on Thursday.
With the nice weather, Mike has also enjoyed getting to be outside some for the past three days. It may get cold again, so I’m glad he is able to get out now. He did try to escape on Saturday. The sun was not in the courtyard area, so he just wanted me to wheel him out the front door onto the street. He wears clothes now, so we probably could have gotten away with it, except for some reason the hospital wants their wheelchairs to stay there!
With Elisabeth being sick, I was able to have some good conversation with just Gabbie tonight. She is very happy when I am home, and sad when I am not. We have worked out a plan to help her be happy when I am gone again. She also said that she just wants everything back to normal. She followed this up with saying that she knows Dad still won’t be able to do a lot, but it will seem normal to have her whole family back together. She also must have said at least 10 times today, “I really love my whole family.” Now that warms a mother’s heart!