This is our fifth day home, but we are definitely not in any routine yet! The best part for Mike has probably been sleeping in his own bed! He doesn’t even need Ambien to get to sleep.
Tomorrow Mike starts outpatient therapy, so we will have a better idea of how exhausting it is to drive to Des Moines, do three hours of therapy straight, and drive back home. Well, I guess we won’t know that till Thursday. He only has two hours of therapy scheduled for tomorrow! I am taking him this week and we’ll call in the driving volunteers to start helping next week. I want to get a feel for how these therapists will be before he goes without me.
The medication routine is also challenging. We’re used to having a nurse bring in whatever he needs whenever he needs it. The morning and evening meds aren’t so hard to remember. It’s the middle of the day one that we forget when we’re busy doing other things! I set the alarm on my cell phone, without the help of any teenage sons, and that seemed to work today. I think it’s still set for tomorrow. There’s still a little bell at the top. We’ll find out tomorrow!
By the end of the week, we will have taken Mike in twice to get coumadin levels. They were low on Monday, which did not surprise me. Apparantly your levels can be affected by many things, one of which is the manufacturer of the pill you take. He had a different one here than in the hospital, so it will take a while to get those levels right again. The coumadin book they gave me was the largest of any of the information booklets we recieved, and I was told to be sure to read that one. It is a rather scary drug to be on, so I am hoping he won’t have to be on it too long. There is a possibility it will be a life time thing.
The kids are adjusting quite well, for the most part. All of them are good at helping Jared keep his toys picked up so that Mike does not trip. Jared is trying, but sometimes forgets. Elisabeth had the great idea of taking Jared’s trains to the attic, so they won’t be in Mike’s way at all. Jared also has gotten Mike to play many rousing games of Snail’s Race. They set up the board on a t.v. tray next to Mike’s recliner and then both can play. Jared is very animated when he plays this game, so he is fun to watch. Overall, we are all just glad to be home!